AL Amyloidosis

AL Amyloidosis

AL amyloidosis and you

AL amyloidosis is one of the most common types of amyloidosis,[1] where mutated white plasma cells in your bone marrow produce misfolded proteins creating deposits that affect organs such as the heart, kidneys, nerves, or parts of the digestive system.[2] AL amyloidosis is not cancerous, although it may occasionally be associated with a rare type of blood cancer that also starts in white plasma cells called multiple myeloma. [2]

Key topics

About AL Amyloidosis

Though AL amyloidosis is the most common form of amyloidosis, there are several types of the condition.

Symptoms

Symptoms for AL amyloidosis may be present before diagnosis. They range from fatigue and weakness to more serious problems that can impact organs such as the heart and kidneys.[3]

Treatments

While there is no cure for AL amyloidosis there are treatment options to help manage the condition. [3]

Living with AL Amyloidosis

Get some tips on how to manage your day-to-day life with AL amyloidosis. Take care of your physical and emotional wellbeing.

Your Healthcare Team
You will meet many people during your care pathway. Understand the role each person will play in your treatment. This will vary from country to country.
Support and Caregivers

Although AL amyloidosis is rare – remember you are not alone. Gain access to support groups that can provide valuable insights into understanding a diagnosis.

References

Myeloma UK AL amyloidosis Essential Guide. Accessed May 30, 2022.
Lousada I, Comenzo RL, Landau H, et al. Light chain amyloidosis: patient experience survey from the Amyloidosis Research Consortium. Advances in Therapy. 2015;32(10):920-928.
Amyloidosis Support. Amyloidosis awareness. Accessed May 26, 2022.
McCausland KL, White MK, Guthrie SD, et al. Light chain (AL) amyloidosis: the journey to diagnosis. The Patient-Patient-Centered Outcomes Research. 2018;11(2):207-16.
Myeloma UK. Diet and nutrition. Living well with AL amyloidosis Infosheet. Accessed May 26, 2022.
Healthline. 8 Natural and Complementary Therapies for Amyloidosis. Accessed May 26, 2022.
Shin SC, Robinson Papp J. Amyloid neuropathies. Mount Sinai Journal of Medicine: A Journal of Translational and Personalized Medicine. 2012;79(6):733-48.
Cancer.Net. Amyloidosis: Symptoms and Signs. Accessed May 26, 2022.
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