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Chronic lymphocytic leukaemia (CLL) and you

Welcome to the CLL area of the JanssenWithMe platform, a section dedicated to supporting people living with the disease.

Receiving a diagnosis of CLL can come with a raft of different emotions, but by building up your knowledge about the disease, you can prepare yourself for what is to come. It’s the first step towards effectively managing your CLL.

Each person will experience the disease differently. Some will require urgent care, while others will experience requiring treatment much later, if at all, due to its slow development.[1] Understanding CLL and the various treatment options that are available can help you make much more informed decisions during consultations, enabling you to help tailor your treatment to your personal needs, and overall, better prepare you to manage a life with CLL. Remember, your doctor should be the first person you talk to about more specific and in-depth queries.

Key topics

About CLL

Gain an overview of chronic lymphocytic leukaemia (CLL), what it is, getting diagnosed and the stages.

Symptoms

Information about the main signs of CLL and what to expect with disease progression.

Treatments

Learn more about the different treatments available to you.

Living with CLL

Discover practical tips for helping you manage and live with CLL and its symptoms

Your healthcare team

Find out about the key people in your healthcare team, what to expect in consultations and key questions to ask.

Support and caregivers

Find links to local support networks, online forums, and additional information to help caregivers to provide the best support they can.

References

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National Psoriasis Foundation. Life with Psoriasis. Available at: https://www.psoriasis.org/life-with-psoriasis/ Accessed: December 2023
NHS. Living with Psoriasis. Available at: https://www.nhs.uk/conditions/psoriasis/living-with/ Accessed: December 2023
National Psoriasis Foundation. About Psoriasis. Available at: https://www.psoriasis.org/about-psoriasis/ Accessed: December 2023
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA). Psoriasis: a simple explanation. Available at: https://www.papaa.org/learn-about-psoriasis-and-psoriatic-arthritis/common-questions/psoriasis-a-simple-explanation/ Accessed: December 2023
Arlington Dermatology. A look at the types of Psoriasis. Available at: A Look at the Types of Psoriasis - Arlington Dermatology. Accessed: December 2023
National Psoriasis Foundation. Inverse Psoriasis. Available at: https://www.psoriasis.org/inverse-psoriasis/ Accessed: December 2023
National Psoriasis Foundation: Pustular Psoriasis. Available at: https://www.psoriasis.org/pustular/ Accessed: December 2023
National Psoriasis Foundation: Erythrodermic Psoriasis. Available at: https://www.psoriasis.org/erythrodermic-psoriasis/ Accessed: December 2023
National Psoriasis Foundation. Psoriasis Statistics. Available at: Get the Facts About Psoriasis and Psoriatic Arthritis : National Psoriasis Foundation Accessed: December 2023.
European Parliament. Parliamentary Question: EU action on psoriasis. Available at: Parliamentary question | EU action on psoriasis | E-010237/2012 | European Parliament (europa.eu) Accessed: January 2024.
Rachakonda, T.D. , Schupp, C. W. , Armstrong, A. W., Psoriasis prevalence among adults in the United States. 2014 March, 70(3):512-6
VeryWellHealth.com How Psoriasis is diagnosed. Available at: https://www.verywellhealth.com/how-psoriasis-is-diagnosed-2788316 Accessed: December 2023
Mayo Clinic. Psoriasis Diagnosis and Treatment. Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/diagnosis-treatment/drc-20355845 Accessed: December 2023
World Health Organization. Global Report on Psoriasis. 2016. Available at: 9789241565189_eng.pdf;jsessionid=59BF358B7BAF831581BEE9D2E728D5D0 (who.int) Accessed: January 2024
Rapp SR, et al. J Am Acad Dermatol 1999;41:401–7
Pompili, M., et al (2016). Suicide risk and psychiatric comorbidity in patients with psoriasis. The Journal of international medical research, 44(1 suppl), 61–66.
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