Multiple myeloma and you

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Multiple myeloma and you

When someone is first diagnosed with multiple myeloma, it can often lead to feelings of anxiety, a sense of being overwhelmed, and even anger at the situation. Building knowledge can help you tackle the disease and deal with it every day. It’s the first step towards effective treatment.

The information on this website is intended to give you an overview of multiple myeloma and provide answers to some of the most commonly asked questions we hear from other multiple myeloma patients. Remember, though, that your haematologist should be the first person you talk to about more specific queries.

How you can use this website

Use the navigation panel above to jump to information that is most relevant for you. Alternatively, we have selected some of the most commonly searched for content below which you can click on via each icon.

Comprehensive booklets addressing some of the topics tackled in this website can also be found at the end of the concerned sections for you to download and keep.

This site is regularly updated with new resources, keep an eye out on the main page for new updates.

Key topics

About multiple myeloma

The information on this page is intended to give you an overview of multiple myeloma and provide answers to some of the most frequently asked questions we hear from people living with the condition.

Managing multiple myeloma

Click here to learn practical tips and tricks for helping to manage and live with your disease and its symptoms.

Treatments

Although there is not currently a cure for multiple myeloma, treatments are improving all the time. Click here to learn about the different treatements your doctor may discuss with you.

Carers

Caring for someone with multiple myeloma can be complex and demanding. This section provides helpful advice and guidence for family and friends who may be caring for a loved one.

Janssen collaborations & initiatives

Janssen has been active in oncology for over 30 years and we have a range of support materials, tools, and services to help you better live with your condition.

References

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NHS. Living with Psoriasis. Available at: https://www.nhs.uk/conditions/psoriasis/living-with/ Accessed: December 2023
National Psoriasis Foundation. About Psoriasis. Available at: https://www.psoriasis.org/about-psoriasis/ Accessed: December 2023
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA). Psoriasis: a simple explanation. Available at: https://www.papaa.org/learn-about-psoriasis-and-psoriatic-arthritis/common-questions/psoriasis-a-simple-explanation/ Accessed: December 2023
Arlington Dermatology. A look at the types of Psoriasis. Available at: A Look at the Types of Psoriasis - Arlington Dermatology. Accessed: December 2023
National Psoriasis Foundation. Inverse Psoriasis. Available at: https://www.psoriasis.org/inverse-psoriasis/ Accessed: December 2023
National Psoriasis Foundation: Pustular Psoriasis. Available at: https://www.psoriasis.org/pustular/ Accessed: December 2023
National Psoriasis Foundation: Erythrodermic Psoriasis. Available at: https://www.psoriasis.org/erythrodermic-psoriasis/ Accessed: December 2023
National Psoriasis Foundation. Psoriasis Statistics. Available at: Get the Facts About Psoriasis and Psoriatic Arthritis : National Psoriasis Foundation Accessed: December 2023.
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VeryWellHealth.com How Psoriasis is diagnosed. Available at: https://www.verywellhealth.com/how-psoriasis-is-diagnosed-2788316 Accessed: December 2023
Mayo Clinic. Psoriasis Diagnosis and Treatment. Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/diagnosis-treatment/drc-20355845 Accessed: December 2023
World Health Organization. Global Report on Psoriasis. 2016. Available at: 9789241565189_eng.pdf;jsessionid=59BF358B7BAF831581BEE9D2E728D5D0 (who.int) Accessed: January 2024
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Pompili, M., et al (2016). Suicide risk and psychiatric comorbidity in patients with psoriasis. The Journal of international medical research, 44(1 suppl), 61–66.
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