29 February is Rare Disease Day

29 February is Rare Disease Day

This year, Rare Diseases Day (RDD) falls on the rarest day of all in 2024 – 29 February! The event, held annually, aims to raise awareness of rare diseases and their impact on those living with them, their families, and caregivers.

At Janssen, we are committed to this goal, and are working to drive change for the 300 million people worldwide (and approximately 30 million in Europe) who are living with one of the 6,000-plus rare diseases[1][2]. Our participation in awareness events, such as RDD, is an integral part of this.

We make strides by focused research and development programs to ultimately bring new, groundbreaking medicines to those affected by rare diseases. With our expertise in therapeutic areas like Pulmonary Hypertension, Retina, Immunology, Oncology and Neuroscience, we leverage scientific and operational knowledge to make a difference. Collaborating globally with partners and utilizing innovative tools, we are invested in improving health outcomes for individuals impacted by rare diseases.

At Janssen, we understand the importance of time for those affected by rare diseases. Patients shouldn't have to wait endlessly for diagnosis and treatment. That's why we focus on areas where we have the potential to make a substantial impact, including rare diseases. We tirelessly advance the science and chase breakthroughs in conditions like pulmonary arterial hypertension (PAH), AL amyloidosis, myasthenia gravis, rare inherited retinal diseases, rare maternal-fetal diseases, and rare blood disorders and cancers.

Our work at Janssen is fueled by the vision of a future where disease is a thing of the past. We are dedicated to finding lasting solutions and never cease in our pursuit.

Visit our dedicated pages

See examples of how we’re raising awareness for people living with rare disease.

Pulmonary Hypertension
Inherited retinal diseases

Rare diseases in numbers

 

 

* Image source of header and banner: Rare Disease Day website. https://www.rarediseaseday.org

References

Mayo Clinic. Psoriasis Symptoms and Causes. Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/symptoms-causes/syc-20355840. Accessed: December 2023.
National Psoriasis Foundation. Life with Psoriasis. Available at: https://www.psoriasis.org/life-with-psoriasis/ Accessed: December 2023
NHS. Living with Psoriasis. Available at: https://www.nhs.uk/conditions/psoriasis/living-with/ Accessed: December 2023
National Psoriasis Foundation. About Psoriasis. Available at: https://www.psoriasis.org/about-psoriasis/ Accessed: December 2023
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA). Psoriasis: a simple explanation. Available at: https://www.papaa.org/learn-about-psoriasis-and-psoriatic-arthritis/common-questions/psoriasis-a-simple-explanation/ Accessed: December 2023
Arlington Dermatology. A look at the types of Psoriasis. Available at: A Look at the Types of Psoriasis - Arlington Dermatology. Accessed: December 2023
National Psoriasis Foundation. Inverse Psoriasis. Available at: https://www.psoriasis.org/inverse-psoriasis/ Accessed: December 2023
National Psoriasis Foundation: Pustular Psoriasis. Available at: https://www.psoriasis.org/pustular/ Accessed: December 2023
National Psoriasis Foundation: Erythrodermic Psoriasis. Available at: https://www.psoriasis.org/erythrodermic-psoriasis/ Accessed: December 2023
National Psoriasis Foundation. Psoriasis Statistics. Available at: Get the Facts About Psoriasis and Psoriatic Arthritis : National Psoriasis Foundation Accessed: December 2023.
European Parliament. Parliamentary Question: EU action on psoriasis. Available at: Parliamentary question | EU action on psoriasis | E-010237/2012 | European Parliament (europa.eu) Accessed: January 2024.
Rachakonda, T.D. , Schupp, C. W. , Armstrong, A. W., Psoriasis prevalence among adults in the United States. 2014 March, 70(3):512-6
VeryWellHealth.com How Psoriasis is diagnosed. Available at: https://www.verywellhealth.com/how-psoriasis-is-diagnosed-2788316 Accessed: December 2023
Mayo Clinic. Psoriasis Diagnosis and Treatment. Available at: https://www.mayoclinic.org/diseases-conditions/psoriasis/diagnosis-treatment/drc-20355845 Accessed: December 2023
World Health Organization. Global Report on Psoriasis. 2016. Available at: 9789241565189_eng.pdf;jsessionid=59BF358B7BAF831581BEE9D2E728D5D0 (who.int) Accessed: January 2024
Rapp SR, et al. J Am Acad Dermatol 1999;41:401–7
Pompili, M., et al (2016). Suicide risk and psychiatric comorbidity in patients with psoriasis. The Journal of international medical research, 44(1 suppl), 61–66.
Logo Janssen | Pharmaceutical Companies of Johnson & Johnson