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Chronic lymphocytic leukaemia (CLL) and you

Welcome to the CLL area of the JanssenWithMe platform, a section dedicated to supporting people living with the disease.

Receiving a diagnosis of CLL can come with a raft of different emotions, but by building up your knowledge about the disease, you can prepare yourself for what is to come. It’s the first step towards effectively managing your CLL.

Each person will experience the disease differently. Some will require urgent care, while others will experience requiring treatment much later, if at all, due to its slow development. Understanding CLL and the various treatment options that are available can help you make much more informed decisions during consultations, enabling you to help tailor your treatment to your personal needs, and overall, better prepare you to manage a life with CLL. Remember, your doctor should be the first person you talk to about more specific and in-depth queries.

Key topics

About CLL

Gain an overview of chronic lymphocytic leukaemia (CLL), what it is, getting diagnosed and the stages.

Symptoms

Information about the main signs of CLL and what to expect with disease progression.

Treatments

Learn more about the different treatments available to you.

Living with CLL

Discover practical tips for helping you manage and live with CLL and its symptoms

Your healthcare team

Find out about the key people in your healthcare team, what to expect in consultations and key questions to ask.

Support and caregivers

Find links to local support networks, online forums, and additional information to help caregivers to provide the best support they can.

References

[1]
Chen J, Tian D-C, Zhang C, et al. Incidence, mortality, and economic burden of myasthenia gravis in China: A nationwide population-based study. The Lancet Regional Health - Western Pacific. 2020;5(100063). https://doi.org/10.1016/j.lanwpc.2020.100063.
[2]
National Institute of Neurological Disorders and Stroke (NINDS). Myasthenia Gravis. Available at: https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis Last accessed: July 2024.
[3]
Dewilde S, et al. People Diagnosed with Myasthenia Gravis have Lower health-related quality of life and Need More Medical and Caregiver Help in Comparison to the General Population: Analysis of Two Observational Studies. Adv Ther. Vol 40, 4377–4394 (2023). Available at: https://doi.org/10.1007/s12325-023-02604-z Last accessed: July 2024.
[4]
Bubuioc A, et al. The epidemiology of myasthenia gravis. Journal of Medicine & Life (2021). Jan-Mar;14(1):7-16. doi: 10.25122/jml-2020-0145.
[5]
Cancer.org. What Is Acute Myeloid Leukemia (AML)? Available at: https://www.cancer.org/cancer/acute-myeloid-leukemia/about/what-is-aml.html Last accessed: July 2024.
[6]
Cancer.org. If You Have Acute Myeloid Leukemia (AML). Available at: https://www.cancer.org/cancer/acute-myeloid-leukemia/if-you-have-acute-myeloid-leukemia.html Last accessed: July 2024.
[7]
Medscape. Ophthalmologic Manifestations of Leukemias. Available at: https://www.medscape.com/answers/1201870-175991/what-is-the-global-prevalence-of-leukemias Last accessed: July 2024.
[8]
Lymphoma-action. Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL). Available at: https://lymphoma-action.org.uk/types-lymphoma/chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll. Last accessed: July 2024.
[9]
Lymphoma-action. Mantle cell lymphoma. Available at: https://lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/mantle-cell-lymphoma Last accessed: July 2024.
[10]
Medscape. Mantle Cell Lymphoma. Available at: https://www.medscape.com/answers/203085-173653/what-is-the-prevalence-of-mantle-cell-lymphoma-mcl Last accessed: July 2024.
[11]
Cancer.org. What Is Multiple Myeloma? Available at: https://www.cancer.org/cancer/multiple-myeloma/about/what-is-multiple-myeloma.html Last accessed: July 2024.
[12]
Mayo Clinic. Myelodysplastic syndromes. Available at: https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977 Last accessed: July 2024.
[13]
Cancer.gov. Myelodysplastic Syndromes Treatment (PDQ®)–Patient Version. Available at: https://www.cancer.gov/types/myeloproliferative/patient/myelodysplastic-treatment-pdq Last accessed: July 2024.
[14]
Dana Farber Cancer Institute. Waldenström's Macroglobulinemia. Available at: https://www.dana-farber.org/waldenstroms-macroglobulinemia/about/ Last accessed: July 2024.
[15]
ECDC. Questions and answers on COVID-19: Basic facts. Available at: https://www.ecdc.europa.eu/en/covid-19/questions-answers/questions-answers-basic-facts Last accessed: July 2024.
[16]
National Institute of Allergy and Infectious Diseases. Coronaviruses. Available at: https://www.niaid.nih.gov/diseases-conditions/coronaviruses Last accessed: July 2024.
[17]
WHO. HIV and AIDS. Available at: https://www.who.int/news-room/fact-sheets/detail/hiv-aids. Last accessed: July 2024.
[18]
HIV.gov. What is HIV? Available at: https://www.hiv.gov/hiv-basics/overview/about-hiv-and-aids/what-are-hiv-and-aids. Last accessed: July 2024.
[19]
Griffiths C, Drews SJ, Marchant DJ. Respiratory Syncytial Virus: Infection, Detection, and New Options for Prevention and Treatment Clin Microbiol Rev. 2017Z;30(1):277–319
[20]
European foundation for the care of newborn infants. Respiratory syncytial virus (RSV). Available at: https://www.efcni.org/wp-content/uploads/2018/03/EFCNI_factsheet_RSV_web.pdf Last accessed: July 2024.
[21]
CDC.gov. Questions and Answers about Tuberculosis. Available at: https://www.cdc.gov/tb/media/Question_Answers_About_TB_English.pdf. Last accessed: July 2024.
[22]
WHO. Tuberculosis. Available at: https://www.who.int/news-room/fact-sheets/detail/tuberculosis. Last accessed: July 2024.
[23]
Saginala, K., Barsouk, A., Aluru, J. S., Rawla, P., Padala, S. A., & Barsouk, A. (2020). Epidemiology of Bladder Cancer. Medical sciences (Basel, Switzerland), 8(1), 15. https://doi.org/10.3390/medsci8010015
[24]
ACS. What is Bladder Cancer? Available at: https://www.cancer.org/cancer/bladder-cancer/about/what-is-bladder-cancer.html Last accessed: July 2024.
[25]
Globocan 2020. Estimated number of incident cases deaths in 2020, Europe, both sexes, all ages. Available at: www.gco.iarc.fr Last accessed: July 2024.
[26]
NHS. Lung Cancer Overview. Available at: https://www.nhs.uk/conditions/lung-cancer/ Last accessed: July 2024.
[27]
ACS. What is Prostate Cancer? Available at: https://www.cancer.org/cancer/prostate-cancer/about/what-is-prostate-cancer.html Last accessed: July 2024.
[28]
European Association of Urology. White Paper on Prostate Cancer: Recommendations for the EU Cancer Plan to tackle Prostate Cancer. Available at: https://uroweb.org/news/epad20-a-landmark-for-early-detection-and-awareness-raising-of-prostate-cancer Last accessed: July 2024.
[29]
Prostate Cancer UK. Prostate Cancer Symptoms. Available at: https://prostatecanceruk.org/prostate-information/about-prostate-cancer/prostate-cancer-symptoms Last accessed: July 2024.
[30]
NIH. What causes Alzheimer’s Disease? Available at: https://www.nia.nih.gov/health/what-causes-alzheimers-disease Last accessed: July 2024.
[31]
WHO. Depression. Available at: http://www.who.int/news-room/fact-sheets/detail/depression. Last accessed: July 2024.
[32]
TED. A Tale of Mental Illness from the Inside. Available at: https://www.ted.com/talks/elyn_saks_a_tale_of_mental_illness_from_the_inside. Last accessed: July 2024.
[33]
[34]
Galiè N, et al. 2015 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension. Eur Heart J 2015; 46:903-975.
[35]
PH Human. What is PAH? Available at: https://www.janssenwithme.com/en/pulmonary-arterial-hypertension/ph-human/ Last accessed: July 2024.