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Chronic lymphocytic leukaemia (CLL) and you

Welcome to the CLL area of the JanssenWithMe platform, a section dedicated to supporting people living with the disease.

Receiving a diagnosis of CLL can come with a raft of different emotions, but by building up your knowledge about the disease, you can prepare yourself for what is to come. It’s the first step towards effectively managing your CLL.

Each person will experience the disease differently. Some will require urgent care, while others will experience requiring treatment much later, if at all, due to its slow development. Understanding CLL and the various treatment options that are available can help you make much more informed decisions during consultations, enabling you to help tailor your treatment to your personal needs, and overall, better prepare you to manage a life with CLL. Remember, your doctor should be the first person you talk to about more specific and in-depth queries.

Key topics

About CLL

Gain an overview of chronic lymphocytic leukaemia (CLL), what it is, getting diagnosed and the stages.

Symptoms

Information about the main signs of CLL and what to expect with disease progression.

Treatments

Learn more about the different treatments available to you.

Living with CLL

Discover practical tips for helping you manage and live with CLL and its symptoms

Your healthcare team

Find out about the key people in your healthcare team, what to expect in consultations and key questions to ask.

Support and caregivers

Find links to local support networks, online forums, and additional information to help caregivers to provide the best support they can.

References

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National Institute of Neurological Disorders and Stroke (NINDS). Myasthenia Gravis. Available at: https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis Last accessed: June 2024.
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Dewilde S, et al. People Diagnosed with Myasthenia Gravis have Lower health-related quality of life and Need More Medical and Caregiver Help in Comparison to the General Population: Analysis of Two Observational Studies. Adv Ther. Vol 40, 4377–4394 (2023). Available at: https://doi.org/10.1007/s12325-023-02604-z Last accessed: June 2024.
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Daum P et al. Perioperative management of myasthenia gravis. BJA Education (2021) 21(11): 414e419
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Myasthenia Gravis Foundation of America (MGFA). Seronegative MG Resource Center. Available at: https://myasthenia.org/Newly-Diagnosed/Seronegative-MG-Resource-Center Last accessed: June 2024.
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Myasthenia Gravis Foundation of America (MGFA). Myasthenia Gravis Clinical Overview. Available at: https://myasthenia.org/Professionals/Clinical-Overview-of-MG#DIAGNOSTIC. Last accessed: June 2024
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NHS. Myasthenia Gravis. Available at: https://www.nhs.uk/conditions/myasthenia-gravis/ Last accessed: June 2024.
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NHS. Diagnosis Myasthenia Gravis. Available at: https://www.nhs.uk/conditions/myasthenia-gravis/diagnosis/ Last accessed: June 2024.