Multiple myeloma and you

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Multiple myeloma and you

When someone is first diagnosed with multiple myeloma, it can often lead to feelings of anxiety, a sense of being overwhelmed, and even anger at the situation. Building knowledge can help you tackle the disease and deal with it every day. It’s the first step towards effective treatment.

The information on this website is intended to give you an overview of multiple myeloma and provide answers to some of the most commonly asked questions we hear from other multiple myeloma patients. Remember, though, that your haematologist should be the first person you talk to about more specific queries.

How you can use this website

Use the navigation panel above to jump to information that is most relevant for you. Alternatively, we have selected some of the most commonly searched for content below which you can click on via each icon.

Comprehensive booklets addressing some of the topics tackled in this website can also be found at the end of the concerned sections for you to download and keep.

This site is regularly updated with new resources, keep an eye out on the main page for new updates.

Key topics

About multiple myeloma

The information on this page is intended to give you an overview of multiple myeloma and provide answers to some of the most frequently asked questions we hear from people living with the condition.

Managing multiple myeloma

Click here to learn practical tips and tricks for helping to manage and live with your disease and its symptoms.

Treatments

Although there is not currently a cure for multiple myeloma, treatments are improving all the time. Click here to learn about the different treatements your doctor may discuss with you.

Carers

Caring for someone with multiple myeloma can be complex and demanding. This section provides helpful advice and guidence for family and friends who may be caring for a loved one.

Janssen collaborations & initiatives

Janssen has been active in oncology for over 30 years and we have a range of support materials, tools, and services to help you better live with your condition.

References

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Mahic, et al. Healthcare resource use in myasthenia gravis: a US health claims analysis. Ther Adv Neurol Disorders (2023). Available at: https://doi.org/10.1177/17562864221150327 Last accessed: June 2024.
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John Hopkins Medicine. Myasthenia Gravis. Available at: https://www.hopkinsmedicine.org/health/conditions-and-diseases/myasthenia-gravis Last accessed: June 2024.
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Lazaridis K, et al. Autoantibody Specificities in Myasthenia Gravis; Implications for Improved Diagnostics and Therapeutics. Front Immunol. 2020 Feb 14;11:212. doi: 10.3389/fimmu.2020; 00212. Last accessed: June 2024.
Myasthenia Gravis Foundation of America (MGFA). Seronegative MG Resource Center. Available at: https://myasthenia.org/Newly-Diagnosed/Seronegative-MG-Resource-Center Last accessed: June 2024.
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Myasthenia Gravis Foundation of America (MGFA). Myasthenia Gravis Clinical Overview. Available at: https://myasthenia.org/Professionals/Clinical-Overview-of-MG#DIAGNOSTIC. Last accessed: June 2024
NHS. Myasthenia Gravis. Available at: https://www.nhs.uk/conditions/myasthenia-gravis/ Last accessed: June 2024.
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