My IBD Journey

Select a country to see country specific content

Helping people with IBD

Many people with inflammatory bowel disease (IBD) are able to lead happy and productive lives. However, it can be difficult to understand how to balance IBD with your daily life. Here, we offer advice on a range of issues that you may encounter as an individual living with IBD.

Find out about IBD

Inflammatory bowel disease, or IBD, usually refers to chronic (long-term or life-long) conditions such as Crohn’s disease (CD) or ulcerative colitis (UC).

Managing IBD

Being diagnosed with IBD can be an overwhelming and confusing time, but there are many simple things you can do to help manage your condition.

Hints & Tips

Practical advice for patients, as well as family and friends, including tips on how to live with IBD.

References

Chen J, Tian D-C, Zhang C, et al. Incidence, mortality, and economic burden of myasthenia gravis in China: A nationwide population-based study. The Lancet Regional Health - Western Pacific. 2020;5(100063). https://doi.org/10.1016/j.lanwpc.2020.100063.
National Institute of Neurological Disorders and Stroke (NINDS). Myasthenia Gravis. Available at: https://www.ninds.nih.gov/health-information/disorders/myasthenia-gravis Last accessed: July 2024.
Dewilde S, et al. People Diagnosed with Myasthenia Gravis have Lower health-related quality of life and Need More Medical and Caregiver Help in Comparison to the General Population: Analysis of Two Observational Studies. Adv Ther. Vol 40, 4377–4394 (2023). Available at: https://doi.org/10.1007/s12325-023-02604-z Last accessed: July 2024.
Bubuioc A, et al. The epidemiology of myasthenia gravis. Journal of Medicine & Life (2021). Jan-Mar;14(1):7-16. doi: 10.25122/jml-2020-0145.
Cancer.org. What Is Acute Myeloid Leukemia (AML)? Available at: https://www.cancer.org/cancer/acute-myeloid-leukemia/about/what-is-aml.html Last accessed: July 2024.
Cancer.org. If You Have Acute Myeloid Leukemia (AML). Available at: https://www.cancer.org/cancer/acute-myeloid-leukemia/if-you-have-acute-myeloid-leukemia.html Last accessed: July 2024.
Medscape. Ophthalmologic Manifestations of Leukemias. Available at: https://www.medscape.com/answers/1201870-175991/what-is-the-global-prevalence-of-leukemias Last accessed: July 2024.
Lymphoma-action. Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL). Available at: https://lymphoma-action.org.uk/types-lymphoma/chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll. Last accessed: July 2024.
Lymphoma-action. Mantle cell lymphoma. Available at: https://lymphoma-action.org.uk/types-lymphoma-non-hodgkin-lymphoma/mantle-cell-lymphoma Last accessed: July 2024.
Medscape. Mantle Cell Lymphoma. Available at: https://www.medscape.com/answers/203085-173653/what-is-the-prevalence-of-mantle-cell-lymphoma-mcl Last accessed: July 2024.
Cancer.org. What Is Multiple Myeloma? Available at: https://www.cancer.org/cancer/multiple-myeloma/about/what-is-multiple-myeloma.html Last accessed: July 2024.
Mayo Clinic. Myelodysplastic syndromes. Available at: https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977 Last accessed: July 2024.
Cancer.gov. Myelodysplastic Syndromes Treatment (PDQ®)–Patient Version. Available at: https://www.cancer.gov/types/myeloproliferative/patient/myelodysplastic-treatment-pdq Last accessed: July 2024.
Dana Farber Cancer Institute. Waldenström's Macroglobulinemia. Available at: https://www.dana-farber.org/waldenstroms-macroglobulinemia/about/ Last accessed: July 2024.
ECDC. Questions and answers on COVID-19: Basic facts. Available at: https://www.ecdc.europa.eu/en/covid-19/questions-answers/questions-answers-basic-facts Last accessed: July 2024.
National Institute of Allergy and Infectious Diseases. Coronaviruses. Available at: https://www.niaid.nih.gov/diseases-conditions/coronaviruses Last accessed: July 2024.
WHO. HIV and AIDS. Available at: https://www.who.int/news-room/fact-sheets/detail/hiv-aids. Last accessed: July 2024.
HIV.gov. What is HIV? Available at: https://www.hiv.gov/hiv-basics/overview/about-hiv-and-aids/what-are-hiv-and-aids. Last accessed: July 2024.
Griffiths C, Drews SJ, Marchant DJ. Respiratory Syncytial Virus: Infection, Detection, and New Options for Prevention and Treatment Clin Microbiol Rev. 2017Z;30(1):277–319
European foundation for the care of newborn infants. Respiratory syncytial virus (RSV). Available at: https://www.efcni.org/wp-content/uploads/2018/03/EFCNI_factsheet_RSV_web.pdf Last accessed: July 2024.
CDC.gov. Questions and Answers about Tuberculosis. Available at: https://www.cdc.gov/tb/media/Question_Answers_About_TB_English.pdf. Last accessed: July 2024.
WHO. Tuberculosis. Available at: https://www.who.int/news-room/fact-sheets/detail/tuberculosis. Last accessed: July 2024.
Saginala, K., Barsouk, A., Aluru, J. S., Rawla, P., Padala, S. A., & Barsouk, A. (2020). Epidemiology of Bladder Cancer. Medical sciences (Basel, Switzerland), 8(1), 15. https://doi.org/10.3390/medsci8010015
ACS. What is Bladder Cancer? Available at: https://www.cancer.org/cancer/bladder-cancer/about/what-is-bladder-cancer.html Last accessed: July 2024.
Globocan 2020. Estimated number of incident cases deaths in 2020, Europe, both sexes, all ages. Available at: www.gco.iarc.fr Last accessed: July 2024.
NHS. Lung Cancer Overview. Available at: https://www.nhs.uk/conditions/lung-cancer/ Last accessed: July 2024.
ACS. What is Prostate Cancer? Available at: https://www.cancer.org/cancer/prostate-cancer/about/what-is-prostate-cancer.html Last accessed: July 2024.
European Association of Urology. White Paper on Prostate Cancer: Recommendations for the EU Cancer Plan to tackle Prostate Cancer. Available at: https://uroweb.org/news/epad20-a-landmark-for-early-detection-and-awareness-raising-of-prostate-cancer Last accessed: July 2024.
Prostate Cancer UK. Prostate Cancer Symptoms. Available at: https://prostatecanceruk.org/prostate-information/about-prostate-cancer/prostate-cancer-symptoms Last accessed: July 2024.
NIH. What causes Alzheimer’s Disease? Available at: https://www.nia.nih.gov/health/what-causes-alzheimers-disease Last accessed: July 2024.
WHO. Depression. Available at: http://www.who.int/news-room/fact-sheets/detail/depression. Last accessed: July 2024.
TED. A Tale of Mental Illness from the Inside. Available at: https://www.ted.com/talks/elyn_saks_a_tale_of_mental_illness_from_the_inside. Last accessed: July 2024.
Galiè N, et al. 2015 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension. Eur Heart J 2015; 46:903-975.
PH Human. What is PAH? Available at: https://www.janssenwithme.com/en/pulmonary-arterial-hypertension/ph-human/ Last accessed: July 2024.