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What does living well with HIV mean to you?

With life expectancy now similar to that of people without the condition
[1]
,
[2]
, the meaning of living with HIV has changed for the better. But what it means to live well with HIV is a different story, often unconsidered.

We all know it’s not enough just to survive – you need to thrive to live life to the fullest. And this means something different for everyone.

Whether it’s relationships, mental health support or being seen without stigma; the Moving Fourth initiative exists to help identify and address what matters most to you, so you can live the life you deserve.

Moving Fourth towards a better future with HIV

Since 2014, there’s been a push in HIV toward the World Health Organisation’s three ‘90’ targets:* 90% of people diagnosed; 90% on antiviral medication; 90% with undetectable viral load.

[3]
None of these targets, however, look beyond the virus to consider what life is like for the person living with it. This realisation led to the proposal of a fourth ‘90’: 90% of people with suppressed HIV should have good quality of life.
[4]


With this fourth target in mind, our group of a patient advocacy leader and healthcare professionals, all with expertise in HIV, developed Moving Fourth; an initiative to improve quality of life in HIV through helping patients realise the health goals that matter to them.

The foundation of this initiative is the ‘Health Goals for Me’ framework. Developed to support you and your healthcare professional in creating an individualised care plan, this three step guide can help you chart a course towards healthy living in HIV.

QoL: quality of life.

*Since the proposal of the ‘Health Goals for Me’ framework, UNAIDs have announced an updated 95-95-95 target to help end the AIDS epidemic. Despite this update, the Moving Fourth Steering Committee believe improving quality of life remains a key goal to achieve healthy living with HIV. As such, the framework should still be considered an important component of HIV care.

References

Marcus J.L et al. JAMA Netw Open. 2020 Jun 1;3:6.
May M.T et al. AIDS 2014;28:1193-1202.
UNAIDS. 90-90-90. An ambitious treatment target to help end the AIDS epidemic. October 2014. Available at: https://www.unaids.org/sites/default/files/media_asset/90-90-90_en.pdf (accessed November 2022).
Jeffrey V Lazarus, et al. BMC Med 2016; 14:94.
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