AL Amyloidosis

AL Amyloidosis

AL Amyloidosis and you

AL amyloidosis is one of the most common types of amyloidosis,[1] where mutated white plasma cells in your bone marrow produce misfolded proteins creating deposits that affect organs such as the heart, kidneys, nerves, or digestive system.[2] AL amyloidosis is not cancerous. Though it may occasionally be associated with a rare type of blood cancer that also starts in white plasma cells called Multiple Myeloma. [2]

Key topics

Diagnosis and tests

AL amyloidosis can be diagnosed and monitored with a biopsy, bone marrow sample, various scans such as SAP, CT or MRI scans and blood tests. [3]

Symptoms

Symptoms for al amyloidosis may be present before diagnosis. they range from fatigue and weakness to more serious problems that impact organs such as the heart kidneys.[3]

Treatments

While there is no cure for AL amyloidosis there are treatment options to help manage the condition. [3]

Living with AL Amyloidosis (AL AMY)

Get some tips on how to manage your day-to-day life with AL amyloidosis. Take care of your physical and emotional wellbeing.

Your Healthcare Team
You will meet many people on your care pathway. Understand the role each person will play with your treatment. This will vary from country to country.
Support and Caregivers

Although AL amyloidosis is rare – remember you are not alone. Access support groups who can help you understand a diagnosis and more.

References

Palladini G, Merlini G. What is new in diagnosis and management of light chain amyloidosis? Blood. 2016;128(2):159-168.
Myeloma UK AL amyloidosis Essential Guide. Accessed May 30, 2022.
NHS. Amyloidosis. Accessed May 26, 2022
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